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LIVING WITH DBAS
You've been diagnosed with DBAS. Now what?
A DBAS diagnosis can leave you with a lot of questions. You don't have to figure it all out on your own. DBA Canada is her to help you find trusted information, connect with the DBA community, and help you find the right people to talk to.
Dba Canada is here to help you through the journey.
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Living with DBAS
For some people, living with DBAS means regular blood transfusions or other treatment. For others it means managing complications, attending frequent medical appointments or making decisions about treatment and the future.
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For children and their families, DBAS can affect school, friendships, activities and everyday family life.
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As patients grow into adulthood, new questions can arise around managing their illness, moving away to school, living independently. Questions may arise around this indepence, work, relationships, fertility, and transitioning to adult care.
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There is no single way to live with DBAS. Every patient's experience in different.
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Reach out to our Executive Director
Janet Geibel is the Executive Director at DBA Canada and a mom of an adult DBA patient. Her son was diagnosed 18 years ago. "I know how overwhelming a DBA diagnosis can feel. If you have questions about where to start, finding DBA informed care, or simply need somone who understand please reach out. I'm here to help"
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IMPORTANT DBAS INFORMATION
The international consensus statement provides current recommendations for the diagnosis, treatment, and long-term surveillance of Diamond Blackfan Anemia Syndrome. It was developed by an international panel of DBA Experts and is intended to help guide care for children and adults living with DBA sydrome.
